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Old August 11th, 2011, 14:12
MCHL MCHL is offline
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Join Date: Aug 2011
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Default Invitation to take part in research

Posted with permission from the forum administrator. Please disregard this if it doesn't interest you.


Have you experienced the death of your child from a life-limiting illness?

Dr. Susan Cadell, Associate Professor and Director of the Manulife Centre for Healthy Living at Wilfrid Laurier University’s Faculty of Social Work and her colleagues are currently conducting a study of bereaved parents who have cared for a child with a life-limiting illness. The study is called Stress and Growth Over Time: Caregiving and Bereaved Parents of Children with Life-Limiting Illness.

Who will this study benefit?

The information provided will help caregivers, social workers and medical staff better understand and support families during the care and death of a child.

Who can take part?

We are looking for parents/guardians who are willing to share the story of caring for their child, the story of their death and how that experience changes parents’ lives. We recognize that sharing the life and death of your child is both sacred and difficult. We appreciate the courage and time taken to assist us in this study.

Any parent or caregiver who has lost a child (18-years old and under) to a life-limiting illness can take part. There is no limit on how long ago the child has passed away.

What would taking part involve?

For this study, you will be asked to complete a set of questionnaires at two separate times. The questionnaires will be sent to you by mail and will take one to one-and-a-half hours to complete. Once you’ve completed and returned the first questionnaire package, an identical follow-up package will be sent to you one year later.

Participants will not be identified in the study.

Questionnaires are available in either English or French.

For more information, or if you are interested in participating in this study, please contact the Research Coordinator at 1-800-810-0721 or


Principal Investigator: Dr. Susan Cadell
Co-Investigators: Dr. Hal Siden (University of British Columbia), Dr. Lynn Straatman (Canuck Place Children’s Hospice), Dr. Betty Davies (University of Victoria), Dr. Rose Steele (York University), Dr. Stephen Liben (Montreal Children’s Hospital), Dr. David Hemsworth (Nipissing University)
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